Muse maker Interaxon reportedly trained AI on users’ de-identified brainwave data, then revised its privacy policy after journalists asked questions.

  • endless_nameless@lemmy.world
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    1 day ago

    Why anyone would connect a brainwave scanner to the internet and the wear for 8 hours every night it is beyond me. I’ve run out of sympathy. This is like slathering yourself in blood and jumping into a shark tank.

    At a certain point, personal accountability for your privacy has got to enter the conversation with normal people.

    • Jo Miran@lemmy.ml
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      1 day ago

      I hear what you are putting out there but I can absolutely sympathize with the users. I suffer from chronic insomnia. My worst episode was when I go no more than 90 minutes of light sleep per 24 hour period for a stretch of about two months. It landed me in the hospital, on suicide watch, paranoid, and a lot more.

      Once sleep gets bad for long enough, you’d try anything.

      • karashta@sopuli.xyz
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        1 day ago

        I stopped smoking weed to get a job in my late twenties and stopped sleeping more than 2 hours at a time for months.

        People who get sleep just don’t know how bad it gets and how low the quality of life gets.

        • erinyes (she/her)@lemmy.blahaj.zone
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          idk how people with insomnia keep it together. ive had some stretches of being unable to get to sleep, or having a really hard time getting to sleep, or waking up really easily, and i swear after a few days of that i was ready to commit a murder. lack of sleep makes me Crazy. idk how anyone could deal with that for months. my condolences.

    • searabbit@piefed.social
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      1 day ago

      What are “normal” people to you? Because usually that excludes the disabled and those with poor health, and those are the most vulnerable to health data privacy violations. You don’t have to care about other people’s privacy at all if you’re so exasperated, but when your health fails you, and it will, you will also find yourself suddenly not so concerned with where your data is going as long as you can get the medical care you need.

      • endless_nameless@lemmy.world
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        1 day ago

        Hey ding-dong, the interaxon muse is NOT A MEDICAL DEVICE. You’re acting like this is only product in its niche. Guess what? There are a million different snake-oil obvious scams for people to choose from in the medicinal pseudoscience field that don’t connect to the internet.

        You should do even a single minute of research before scolding someone on something you clearly know very little about. This is not medical care. If it was medical care, it would be covered under HIPPA or whatever country’s medical confidentiality laws.

    • bluespin@lemmy.world
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      1 day ago

      You’re correct, but it doesn’t mean we should stop giving companies bad press when they fail to disclose data sharing like this. Shifting the blame to users only normalizes this behavior for companies offering these products